Caregiver Diaries: An Unbroken Man

When I was young I loved sitting under my parent’s desk, tucked away in my quiet cubbyhole, writing poetry. In school, instead of listening to my math teacher, I spent too much time daydreaming and writing. I still avoid numbers, but adore words. This is one reason I am attracted to Eric Fischer’s story. Eric’s Continue reading


Caregiver Diaries: For the Love of Sev

I met Nanett Prausa in 1999 when our boys were babies and we were both part of an email listserv for parents of children with microcephaly. Through that forum we could talk to other parents on a daily basis about feeding problems, seizure treatment, growth and vision issues. It was a great way to pool Continue reading


Caregiver Diaries: Adam’s Story

I’ve met a lot of extreme caregivers during the past sixteen years. Part of my path in life includes raising a son who is completely dependent due to a rare brain disorder. I’m grateful that Daniel was born in 1998 when internet support groups were getting off the ground. What I lacked in face to Continue reading